Juvenile Arthritis

Camp JRA (Juveniles Reaching Achievement)

Camp JRA strives to educate and empower campers in disease management and control, and it lets them have fun in the process! This week-long residential camp takes place the third week in July in Millville, Pennsylvania at Camp Victory – a facility designed for children with special needs. Campers take part in activities designed to improve independent functioning, self-esteem, leadership and communication skills. Visit the Camp JRA Event Page for more information.

Family education days typically take place in the spring and focus on educating the entire family. Sessions focus on disease management techniques, updates in medication and treatment, and parent support sessions. Children enjoy activities and games while parents participate in session facilitated by pediatric rheumatologists and other health professionals.

The Youth Ambassador program is dedicated to encouraging youth leadership and participation in arthritis awareness activities across the state. The program was created to provide support and recognition for the voices, ideas and positive contributions of young people. Members of the Youth Ambassador program are trained in advocacy skills such as relating their disease experience to legislators, classmates and teachers.

The Holiday Party gives families the opportunity to share the magic of the holiday season together. Held at area pediatric rheumatology centers, the Holiday Party lets families relax, celebrate, and socialize. Group entertainment, gifts and refreshments are provided.

There are many questions and concerns when a child is diagnosed with a rheumatic disease. The Newly Diagnosed Family Packets ensure that many of these questions are answered, and resources are offered to quell the many fears and worries a family may have about juvenile arthritis. Informational brochures, newsletters, medical resources, program descriptions and information for teachers and school nurses are some of the materials within these packets.

The Arthritis Foundation is constantly advocating for children with juvenile arthritis and other rheumatic diseases. Politicians, school nurses, teachers, health professionals and many other people are unaware that juvenile arthritis exists and that it is a major health concern. Advocacy allows for public education, understanding and changes in service as needed.